Last month Eddie along with film stars Benedict Cumberbatch CBE and Taron Egerton were announced as official supporters of the Motor Neurone Disease Association.
Eddie will be taking the role of ‘Patron’ in recognition for his work in creating awareness of MND, and of the MND Association, on a global scale. You might remember that he dedicated his Academy Award for ‘Best Actor’ for ‘The Theory of Everything‘ to everyone suffering the disease. After his Oscar win, in April, he visited an MND Clinic in London to show the Oscar to one of the people who helped him understand the difficulties of living with the disease, Glenn Phillips.
Here are some words Eddie said about becoming an MND Association Patron from the press release:
“I knew that understading the disease was going to be the essential element of ‘The Theory of Everything’. We were invited to visit MND clinics, and I went every couple of weeks for a few months so I could find out what life was really like for people living with the disease. These people were incredibly receptive, and really kind. All the understading they gave me went into the film, and there’s no question that we couldn’t have done it without the help we had from everyone. Being an MND Association Patron tops off the life-changing experiences I had making this film, and learning about the devastation of motor neurone disease along the way.”
Eddie was challenged to take the Ice Bucket Challenge this year by fellow Academy Award-winner Renée Zellweger, who made a video in support of the Golden West Chapter of the ALS Association and he accepted!
The MND Association raised £7 million last year and spent £8.5million on research and projects which support people living with MND. They want to encourage people to take the Ice Bucket Challenge again this year, find out how to get involved here.
If you’d like to donate you can do so by texting ICED55 £5 to 70070 (UK) or if you’d learn more about the campaign, you can visit the campaign’s website here.